Essays and Articles

Vox

I thought I could fix my Alzheimer’s patients. I learned to help them instead.

… There I learned quite a bit about Alzheimer’s. I learned about plaques and tangles, the beta-amyloid protein, the possible causes, and all of the statistics. But neither my desire to help nor any class prepared me for the reality of working with actual patients. The first day I stepped onto the floor of a nursing home, when I transformed from a curious student to an actual caregiver, everything I thought about dementia, aging, friendship, and even the nature of death changed.

The Huffington Post

Huffington Post – Nicholas Conley

The Reality of Nursing Homes

… But the truly agonizing thing about nursing homes is the facelessness of the system that all of these residents live in, locked into a bureaucratic structure where the bottom dollar matters more than human individuality, and where countless people spend the rest of their lives inside tiny shared rooms, hoping for a day where they can finally go back home. A day that, for too many, will never come.

Alzheimers.net

Pale Highway – Nicholas Conley – Alzheimer’s

Why I Wrote a Novel about Alzheimer’s

I felt a fierce desire to speak out about the disease. Unless one either has Alzheimer’s, or has a family member with the disease, it seems to exist in a hidden world that most people don’t spend too much time thinking about. I wanted to take that hidden world and bring it into the light, hopefully doing my part to raise more awareness about a disease that doesn’t get even half the attention it deserves. I wanted to show people what it means to have Alzheimer’s in today’s world.

Truthout

Why the US Should Have Universal Healthcare

In the United States, healthcare has been one of the biggest political battles of the decade. As a healthcare worker myself, it’s an issue that strikes close to home. My years of experience caring for people with dementia, traumatic brain injuries, tetraplegia, cancer, and more has given me a firsthand look into what our healthcare system is like at the ground level, and it’s a different world from the vague concepts that politicians volley back and forth at each other.

HeadStuff.org

10 Surprising Facts about Alzheimer’s

When it comes to debilitating illnesses, there are few menaces more looming. Over 46 million people currently suffer from some form of dementia, a number that is predicted to only grow bigger as the baby boomers age. While researchers understand what Alzheimer’s does to the human brain, there is a great deal of mystery surrounding why it does it, and in the midst of theories, speculation and diagnosis, quite a bit of misinformation and confusion has popped up regarding what Alzheimer’s is, what Alzheimer’s does, how to understand it, and where it comes from.

SFFWorld.com

PALE HIGHWAY The Value of Speculative Fiction

There’s this strange idea that literary fiction and speculative fiction are in fierce opposition to each other, but in reality, both forms of literature are nothing but different techniques in which to tell a story. There’s this even stranger idea that speculative fiction—call it genre fiction, sci-fi, horror, fantasy, you get the gist—is somehow “lesser” than literary fiction, and thus that it must be looked down upon, and put on a lower shelf. This attitude leads to bizarre developments, such as how Kurt Vonnegut—who is clearly a science fiction author, considering all his writings about Tralfamadorians, timequakes, and more—is not generally regarded by the literary establishment as a writer of science fiction, mainly because the cultural importance of his work means that if they were to admit such a thing, they would also have to acknowledge that sci-fi can be just as significant as literary fiction.

Medium

Reinventing Nursing Homes: The Hogewey Model

In the contemporary era, the nursing home system is a corporate mess that packs too many people into a crowded hospital-like facility, with not enough staff to properly cover their needs. The problem is inherent in the design: “total institutions”, as Erving Goffman once wrote in his 1961 book Asylums, are systems that break down the individual in order to better serve the system. A total institution will force people to conform to its rituals instead of adapting to the people within the system.

BigAl’s Books & Pals

Nicholas Conley – Pale Highway

Guest Post from Nicholas Conley, author of Pale Highway

Working second shift in a nursing home, the last half hour is when exhaustion finally sets in. After eight hours—or often in my case, sixteen hours—of working with all of the residents, racing from call bell to call bell, and getting everybody comfortably settled in bed, this is the point where the workers can finally sit down for a moment and finish documenting about the events of the day. It’s also the moment where the body’s aches and strains finally make themselves apparent. The lights are off, most of the residents are asleep, and everyone is getting ready for the overnight crew to come in with bags under their eyes, and tall cups of gas station coffee gripped in shaky hands.

TopTenz

10 Things that Everyone Gets Wrong about Introverts

Introversion and extraversion are terms that many people misuse, confuse and/or abuse, often with little understanding of what the words actually mean. The general perception seems to be that quiet, shy people are introverted, whereas loud, boisterous people are extraverted, but this simply isn’t the case. Quietness and loudness have nothing to do with the matter. It’s all about where a person gets their energy from, and what draws that energy away.

One thought on “Essays and Articles”

“The daily routines of most people are, if closely considered, completely bizarre…With Alzheimer’s, people lose the ability to hide how weird they really are. ” [VOX – Alzheimer’s]

Precisely!! I have always thought that but have not had enough experience to confirm it. The few experiences I have had visiting various institutions whether a rehab or long term care facility it seemed the folks getting cared for were inappropriately labeled – they weren’t crazy this that and the other, rather they had lost the ability to, as you put it later, to mask themselves.

What a wonderful article, I especially loved how you shared from your heart, it made me feel as if I was right there with you, experiencing it along side you. I am left encouraged with that spark to continue to think outside the box of a systematic approach and get back to the core of what love really is.

Looking forward to reading more of your writings!

A little inspiration... , October 23, 2016 at 2:05 pm